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Dedicated to increasing awareness about
systemic lupus erythematosus (SLE), disease activity and related organ damage


As a multi-symptom disease, often unpredictable in its activity, SLE requires expertise from a multi-disciplinary team — for example, rheumatologists, neurologists, cardiologists, and nephrologists.1

Patient care is a team effort that is critical in the management of SLE. The multidisciplinary team helps to foster a strong relationship with the patient and good communication with other providers.2

Unfortunately, patients may have a hard time talking to their providers. Studies have shown that patients tend to underreport their SLE symptoms. Click below to find out more.


52% of patients report that they minimize their symptoms when talking to physicians*,3


72% of physicians are unaware that patients tend to underreport their symptoms*,3

The Lupus Impact Tracker is a trademark of Rush University Medical Center and the Board of Trustees.

* Data from the 2011 National Burden of Lupus survey was funded and developed by GSK. This survey included 957 people in the lupus community — 502 people who reported being diagnosed with SLE, 204 supporters (family members or friends) of people with lupus and 251 rheumatologists.

Key actions to help you enhance patient interactions include the following4:

  • Involve your patient in the SLE management plan
  • Define clear goals
  • Be an active listener
  • Help your patient understand the disease
  • Encourage your patient to ask questions


This worksheet is designed to help patients record symptoms and other changes in their health.

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This worksheet includes a checklist of symptom categories and actions to help your patients track the severity of their symptoms, and select the actions that they plan to take.

English Version (PDF)

Spanish Version (PDF)


This worksheet is designed to help your patients rate the impact of SLE on their health.

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This slide deck discusses the path to diagnosis of SLE, pathogenesis of the disease, impact on patients, and how to best support patients.

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What Next?

There are resources available designed to help you, your team, and your patients be as well-prepared as possible to meet the challenges of SLE.

Learn more now

1. American College of Rheumatology Ad Hoc Committee on Systemic Lupus Erythematosus Guidelines. Guidelines for referral and management of systemic lupus erythematosus in adults. Arthritis Rheum. 1999;42(9):1785-1796. Accessed February 14, 2017. 2. Askanase A. Systemic Lupus Erythematosus (SLE): Understanding and Addressing Patient Needs. Patient Care Insights. Accessed February 14, 2017. 3. Lupus: A Survey Among SLE Patients, Physicians, and Supporters. New York, NY: GfK Roper Public Affairs & Corporate Communications; October 2011. 4. Beusterien K, Bell JA, Grinspan J, et al. Physician-patient interactions and outcomes in systemic lupus erythematosus (SLE): a conceptual model. Lupus. 2013;22(10):1038-1045. Accessed February 14, 2017.