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Dedicated to increasing awareness about
systemic lupus erythematosus (SLE), disease activity and related organ damage

SLE Resources for Patients and Caregivers

The need for healthcare providers to effectively engage with patients with SLE is ongoing and the stakes are high. Even when patients have no complaints and no visual signs of disease, organ damage can be occurring. We've developed these tools to help both you and your patients communicate and be vigilant.

An interactive resource you can use to build individualized handouts for your patients.

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A simple way for your patients to keep track of all the members of their healthcare team and the medications they are taking so they can share it with you during each visit.

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A worksheet designed to help patients record symptoms and other changes in their health.

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This worksheet includes a checklist of symptom categories and actions to help your patients track the severity of their symptoms, and select the actions that they plan to take.

A worksheet designed to help your patients rate the impact of SLE on their health.

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This worksheet can help your patients learn more about how lupus can affect various parts of the body. The worksheet includes space for patients to list concerns to share with their healthcare provider.

Living with lupus can be stressful. This worksheet includes suggestions to help your patients with lupus reduce their stress. Patients can place a checkmark next to the suggestions that they would like to try, then share their ideas with their healthcare provider.

There are many myths about lupus. This worksheet presents facts to help dispel some of the common myths. Patients can place a checkmark next to the myths that concern them, then share these concerns with their healthcare provider.

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This worksheet can help your patients identify specific actions that may make living with lupus more manageable.

Click below to download each of these thorough patient education program materials including instructions, a slide deck complete with speaker's notes, and worksheets for patients.

Program Instructions:

Slide Deck Presentation:

Slide Deck with Notes:

Self-Reflection Worksheets:

The website designed for people living with SLE.

Go there now

This Android app can help your patients track and manage their SLE symptoms.

Visit the Play Store

The Lupus Impact Tracker is a trademark of Rush University Medical Center and the Board of Trustees.

PATIENT LEAFLET BUILDER

An interactive resource you can use to build individualized handouts for your patients.

Get Started