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Dedicated to increasing awareness about
systemic lupus erythematosus (SLE), disease activity and related organ damage

Are your patients with Systemic Lupus Erythematosus (SLE) telling you what you need to know?

Patients with lupus often minimize the effect lupus has on their lives.1 That's why they need a champion. Someone who may be able to help patients understand their lupus, communicate more openly, and take an active role in their own care.

As their healthcare provider, you are in the best position to do just that.

SLE Patient Education Champions Make a Difference

This education program was designed to help you use Managing Your Lupus: How Can You Take a More Active Role?, developed with the Rheumatology Nurses Society (RNS), more effectively with your patients.

  • Review the modules and the accompanying communication tips that may help your patients share more about their lupus
  • Practice what you learned by listening to some common patient scenarios, and consider how you would address the needs of these types of patients
  • Download the presentation and some additional worksheets to use with your patients
  • Conduct patient education programs

Become an SLE Patient Education Champion today. Get started with Module 1 below.

What is Managing Your Lupus: How Can You Take a More Active Role?

Managing Your Lupus: How Can You Take a More Active Role? is a patient education program, developed with the Rheumatology Nurses Society (RNS), designed for you to use to communicate with and educate your patients living with SLE. This program provides a variety of tools, including an invitation, a comprehensive educational presentation, and patient reflection worksheets, to help you run a successful patient education program in your office.

Start reviewing the modules now to become an SLE Patient Education Champion.

Go to Module 1
Go to Module 2
Go to Module 3

Module 1: The Immune System and Lupus

Step 1: Review Chapter 1

Review the basics of lupus and the immune system, the types of lupus, risk factors, and symptoms. You'll also find techniques that may help patients share more about their lupus, along with additional questions to help keep your patients engaged.2

PLAY
PLAY

Step 2: Let's Practice

Download the practice worksheet and listen to the following patient scenarios. Do these people sound like any of your patients? How would you address their particular concerns about the basics of lupus and the immune system?

Listen to the following scenarios. Download the practice worksheet, and use the facts and tips from the presentation to uncover what your patients may not be telling you.

TIFFANY

Is overwhelmed by the disease and its possible effects.

"I didn't realize lupus could affect me in so many different ways. It's scary to hear such a long list of possible symptoms."

PAULA

Isn't sure why she should monitor her symptoms.

"It's hard to make the time to monitor my symptoms, and I'm not even sure what I'd keep track of. I just tell my doctor about them when I have an appointment."

ANGELA

Worries that she won't know when damage is occurring.

"If I'm feeling fine, it seems like my lupus must be under control. How can I tell if it's causing damage?"

Use What You Learned

Apply what you've learned about helping patients understand their lupus.

DOWNLOAD

Download Taking Time for You

Help patients take time for themselves and focus on what matters.

DOWNLOAD

Module 2: Managing Your Lupus

Step 1: Review Chapter 2

Review how you may be able to help patients take an active role in managing their lupus, including making lifestyle changes, monitoring symptoms, finding support, and communicating with the healthcare team. You'll find unique insights into what patients are thinking and how to address their concerns.2

PLAY
PLAY

Step 2: Let's Practice

Download the practice worksheet and listen to the following patient scenarios. How would you address their particular concerns about managing their lupus day to day?

Listen to the following scenarios. Download the practice worksheet, and use the facts and tips from the presentation to uncover what your patients may not be telling you.

ERIC

Feels like there's nothing he can do to manage his lupus.

"I'm not sure if there's anything I can do to manage this disease. I wish I could feel more in control of it."

SARA

Doesn't prepare for her appointments and sometimes cancels if she is feeling well.

"My doctor is really good about asking me how I'm feeling. I'm not sure what I need to be sharing with him. I mean, if I feel okay, I sometimes cancel my appointments."

LILY

Doesn't tell her healthcare team about all of her symptoms.

"I have good days and bad days, just like everyone else. I don't tell my doctor about every little symptom – just the important ones."

Use What You Learned

Apply what you've learned to help patients take an active role in managing their lupus.

DOWNLOAD

Download Creating Your Action Plan and Your Healthcare Team and Treatments

Use these worksheets to help patients make a plan for flare-ups, keep track of their medications, and identify who is on their healthcare team.

DOWNLOAD

Module 3: Resources for You

Step 1: Review Chapter 3

Learn about the resources available that may help patients monitor their symptoms and share information with you and other members of the healthcare team. You'll also find information on how to help patients build a support network.

PLAY
PLAY

Step 2: Let's Practice

Download the practice worksheet and listen to the following patient scenarios. How would you address their particular concerns about finding resources and support?

Listen to the following scenarios. Download the practice worksheet, and use the facts and tips from the presentation to uncover what your patients may not be telling you.

ELAINE

Is uncomfortable sharing personal issues with her healthcare team.

"I feel like my doctor is just there to prescribe medicine and treat the disease, but lupus affects my life in a lot of ways. I would feel awkward talking about all of that with him."

MIKE

Feels like he's dealing with lupus on his own.

"My friends and family don't always understand what it's like living with lupus. Sometimes, it would be nice to talk to someone who knows what I'm going through."

KIM

Is concerned about being a burden on her family and friends.

"I like being independent. I don't want my family and friends to feel like they always have to take care of me."

Use What You Learned

Apply what you've learned to help patients use resources and find support.

DOWNLOAD

Download Building Your Support Team

Help patients identify people who can provide support and resources that may help them take an active role.

DOWNLOAD

Ready for the next step?

References:

1. Lupus: A Survey Among SLE Patients, Physicians, and Supporters. New York, NY: GfK Roper Public Affairs and Corporate Communications; 2011. 2. Berger BA, Villaume WA. Motivational Interviewing for Healthcare Professionals. Washington, DC: American Pharmacists Association; 2013.